2. According to the website Celiac.org “patients who are not doing well on a gluten-free diet may have additional biopsies to rule out refractory celiac disease. Refractory celiac disease, also known as refractory sprue, affects up to 5% of patients. For these patients, the damaged villi in the small intestine do not heal from a gluten-free diet, and all other potential causes for this damage have been ruled out. These patients are usually treated with steroids and immunosuppressants.
Other Common co-occuring conditions in people with celiac disease who don’t feel completely better on a gluten-free diet are:
Read more about those diseases at Celiac.org
3. Another thing we should keep in mind is the ingestion of hidden gluten, even in so called gluten-free products. Gluten truly hides everywhere. So, our tip is stay away from processed food and give preference to whole organic food. Also, watch out for gluten in cosmetics, specially in lipsticks and toothpastes.
4. Finally, it is also important to highlight that there are studies that show not all patients with celiac disease recover by following a strict gluten-free diet. You can read some of those studies here and share with your doctor if you think it’s appropriate.
If you are wondering where you can find healthcare practitioners who treat patients with celiac disease and other gluten-related disorders, you can check the directory at Celiac.Org here. (This is for the United States only)
We would love to read your opinion on this topic, so that we can all help Julie and all the other celiacs like her.